This website is owned and operated by the International Alliance of Mental Health Research Funders (IAMHRF). We recognise that visitors and members may be concerned about how we treat the information they provide, and this privacy policy addresses those concerns.
General Statement
The International Alliance of Mental Health Research Funders (IAMHRF) unites funders on a shared mental health research agenda. It is an initiative hosted by Global Impact, a philanthropy, intermediary, and nonprofit advisor and infrastructure provider.
The IAMHRF is a global network and as a result collects and processes data from a global audience. We are committed to protecting the privacy and security of your data at every level.
Kindly note that this policy only describes the IAMHRF privacy policy. There may be links on our website or in other materials that take you to third parties who have their own policies regarding the use of your data. Please review those regulations separately.
Our Policy
IAMHRF respects the privacy of its online visitors and members. On our site, we do not collect personally identifiable information from individuals unless they provide it to us voluntarily and knowingly. This means we do not require you to register or provide information to us in order to view public areas of our site. IAMHRF only gathers personally identifiable data that is voluntarily submitted by the visitor and members, such as names, job title addresses, country of origin and email addresses.
Data We Collect
This policy outlines why we collect your data, what data is collected, how the IAMHRF uses that data, and your rights pertaining to use of your data.
Why We Collect Your Data
We collect, process, and store your personal data on the basis that it is necessary for achieving our legitimate interests, or when you have explicitly given consent for your data to be collected and processed. The IAMHRF’s legitimate interests include, but are not limited to, growing its network, assessing the needs of mental health research funders, organising events, webinars, virtual meetings and conducting surveys. The IAMHRF also collects personal data for internal purposes including recruiting staff, consultants, and advisory board members for its working groups and governance structures.
What Data the IAMHRF Collects
By accessing our website or interacting with the IAMHRF for any of the legitimate purposes mentioned above, you consent to your data being collected and processed.
The IAMHRF defines “your data” broadly, including identifying and non-identifying data. The IAMHRF may collect data including your name, your email address, job title, cookie-associated data, current organisation, educational or professional background, country of origin or residence, and any other data you explicitly consent to provide to us. We may also collect potentially sensitive health data like lived experience of a mental health challenge. In such cases, we will always ask for your explicit consent to collect and process this data.
We will amend your record when you tell us that your details have changed (e.g. you change job or your organisation phone number). If you leave an organisation and would like us to delete your record, contact us at admin@iamhrf.org and we will do this immediately.
How the IAMHRF Uses That Data
IAMHRF collects your data to:
- Stay in contact with you and provide you with information about its activities (e.g. if you take part in a survey and then provide consent to be contacted about further opportunities to be involved with the IAMHRF), and to invite you to events or speak at meetings and conferences. You can opt out of these communications at any time by emailing admin@iamhrf.org.
- Grow its network and develop its digital presence.
- Respond to your requests. If you contact us with a problem or question, we will use your information to respond.
- Conduct and analyse results from written surveys and interviews assessing the mental research sectors. We will explain any specific privacy notices as part of the activity, should it differ from this privacy notice.
- Inform you about changes in how we operate or provide you with formal documentation as part of your membership/partnership – for instance membership renewal information, billing information, key sector level information, offers, and important service-related notices, such as security and fraud notices. These emails and messages are considered an essential part of the services provided by IAMHRF and it is not possible to opt-out of them unless you provide us with the details of someone else in your organisation who is willing to be contacted instead.
- To otherwise serve the IAMHRF’s legitimate interests as mentioned in the previous section.
How the IAMHRF Stores Your Data
The IAMHRF securely stores your data on the Cloud through platforms including Microsoft SharePoint, HubSpot, and our website. The IAMHRF will only store the minimum amount of identifying data for the minimum amount of time necessary to fulfil its purposes. This may include storing it after an associated activity is completed for the purposes of legal, accounting, or reporting requirements. Unless you would like us to delete your record, we’ll keep any identifying data on file for 3 years, after which, if we still haven’t heard from you in another capacity, we’ll delete it on your behalf.
The IAMHRF is committed to protecting your data. However, in the event of a data breach or that your data has been compromised, the organisation will strive to inform you in a timely manner.
What Other Information May We Hold?
The IAMHRF may also hold and receive:
- Billing information. Members pay a subscription to the IAMHRF. In doing so, we may collect and store the billing address, credit card information or other payment methods provided to it by your organisation. This information may be passed to our host organisation, Global Impact. Please refer to their privacy policy here for information on how they may store your data.
- Website traffic and briefings readings. We also store some information to enable us to view the IAMHRF’s website analytics such as how popular pages on the website are and countries that our website traffic is coming from. This typically involves assessing aggregate level information such as IP addresses and not personal information. Analysing this information allows us to tailor our services to meet the needs of those that interact with the IAMHRF.
- Device information. We may collect information about the device you are using to access our services on, including what type of device it is, what operating system you are using, device settings, application IDs, unique device identifiers, and crash data. Whether we collect some or all this information often depends on what type of device you are using and its settings. This is information solely about your device, and not your personal data.
Your Rights Over Your Data
At any point, you have:
The right to be informed – you have the right to full transparency with regards to how an organisation is using your personal data.
The right of access – you have the right to know exactly what information is being held about you and how it is being processed.
The right of rectification – you are entitled to have personal data rectified if it is inaccurate or incomplete.
The right to erasure – also known as “the right to be forgotten”, you have the right to have your personal data deleted or removed without a specific reason unless you are the key contact for essential IAMHRF communications. You may not opt-out of these communications unless you can provide us with the contact information of someone else in your organisation who is willing to be contacted instead.
The right to restrict processing – you can block or suppress processing of your personal data.
The right to data portability – you have the right to retain and reuse your personal data for your own purpose.
The right to object – in certain circumstances, you are entitled to object to your personal data being used for purposes such as direct marketing or scientific and historical research.
Rights of automated decision-making and profiling – you have the right to not be the subject of a decision based on automated processing (i.e., made without human intervention) where the consequence has a damaging or legal bearing on you.
If you would like to access a copy, update, or request erasure of your identifying information, please contact us at admin@iamhrf.org. We will respond to you within a one-month period.
How We Protect the Security of Your Data
IAMHRF takes security seriously. We take various organisational and technical steps to protect information you provide to us from loss, misuse, and unauthorised access, alteration or disclosure. These steps take into account the sensitivity of the information we collect, process and store, and the current state of technology.
Cookie Policy
Like most other organisations, IAMHRF uses cookies on its website. Cookies are small text files that are stored on your device (computer, tablet, or mobile) when you visit IAMHRF website. Cookies do not identify the individual user, just the computer used.
Cookies provide information to the website owner, and some are essential to allow parts of the website to function properly. They enable you to navigate the site and use its features. Performance Cookies help us understand how visitors interact with our Site by collecting and reporting information anonymously. This allows us to improve the functionality of the Site. Functional Cookies allow our Site to remember choices you make (such as your username) and provide enhanced, personalised features.
IAMHRF uses third parties like Google Analytics for website analytics. These third-party services may collect information about your online activities across different websites.
You have the right to decide whether to accept or reject cookies. You can adjust your cookie preferences through your browser settings.
How To Contact Us About Your Data
Please contact us at admin@iamhrf.org if you would like us to:
- Stop contacting you
- Amend your information
- Delete your information
- Change your preferences
More Information about this Policy any changes made to this policy will be updated here. Please check this page for the most updated version of the policy. This policy is effective as of 3 October 2024. If you have any questions, or at any point you believe your rights or privacy have been violated, please contact us at admin@iamhrf.org.